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Epilepsy Has a Face, A Story & An Angel

I must admit that I really never knew much about epilepsy.  I can recall an incident that happened when I was a very young girl.  A relative in my family was having a seizure and my grandmother told me to get a spoon out of the kitchen.  My grandmother later on told me that when someone has a seizure you should place a spoon in their mouth to prevent the person from swallowing their tongue. (Experts now say when someone is having an epileptic seizure, do not put anything in their mouth, as it is not likely that they will swallow their tongue. If you see someone having a seizure turn the person on their side and clear away nearby objects, so that they do not inadvertently hurt themselves. )  The idea of someone swallowing their tongue frightened me enough to never ask about  seizures again, that is until I heard about a former high school classmate, Natalie Beavers that was afflicted with the condition.

I never was close to Natalie in school, she was a grade below me, but I knew who she was.  I received a facebook message about an event that she was having to benefit her Angels of Epilepsy Foundation.  I was instantly proud of her taking her condition in hand and deciding to help others.  I knew at once I had to attend and make a donation to the cause.  Natalie and her organization are doing another event to benefit those that are living with epilepsy and I wanted to pass on what I had learned about the disease from that first event I attended.  Check out the interview that I had with Natalie below:

Shay: Tell me about yourself.

Natalie: Born and raised on the west-side of Atlanta, Georgia, in a community many know as Adamsville/Plainville.  I am a proud mother of 2 boys, Cameron and Carlton, and so blessed to have them in my life.  I’m also a survivor and proud advocate of Epilepsy Awareness.  I started my foundation, Angels Of Epilepsy, in 2008.  I began thinking about this project in 2007 as I was hospitalized for neurology testing.  After the testing I had brain surgeries that took place in late 2008 at Emory University Hospital in Atlanta. The brain surgeries helped me so much.  I do have a major decrease with my seizures, but due to a cyst that is on my brain, I still live with this medical condition.

My foundation speaks with many people all over the world, we receive calls and respond to e-mails daily to encourage, support, and provide any information needed.  Our main goal is to provide the love and support an epileptic survivor needs.

Angels Of Epilepsy hopes that we can get more people involved and even more educated in reference to epilepsy and the millions around the world living with this medical condition.

Shay:  How were you diagnosed with Epilepsy?

Natalie:  I was diagnosed with epilepsy at the age of 5.  At that time, my parents took me to the hospital because of a high temperature and while I was there I had a few seizures.  Testing took place and doctors found a dime-size scar on the left side of my brain.  I was then diagnosed with epilepsy.  During my high school years, I had no seizures so my family and I thought maybe I had grown out of the condition.  However, during my college years, the seizures did return and became worse than they had ever been.

 Shay:  What is the scariest thing about having this disease?

Natalie:  The scariest thing about living with epilepsy is that this medical condition deals with your brain and your brain controls everything in your body. My seizures mainly occur while I’m asleep, but it can happen at any time.  After I’ve had an episode, my entire body is completely drained.  Sometimes it takes a while for feeling to even return to my body.  Also, after having an episode, it takes some time for your brain to get it’s proper memory back.

My children have had to witness this with me and I really don’t like for them to see their mother suffer; but I’m blessed to have their understanding.
Shay:  Has having epilepsy ever affected your romantic relationships?

Natalie:  Epilepsy can absolutely have an affect with some romantic relationships.  In the past, I actually was on a date with someone and the next thing I remember was the paramedics assisting me.  After that, my date told me that he could not deal with my condition and he hoped the best for me.   I can say that there are people out there with an understanding  heart.  If you love someone dearly, you can put up with anything.  I speak to many epileptics about the particular topic because there are many that has difficulty with love and relationships living with epilepsy.

 

Shay:  What would you like those who are not really familiar with epilepsy to know about the disease and the people who have it?

Natalie:  I want people to know that, yes this is a medical condition that may make us look differently, but we are human just like everyone else.  The condition deals with our brains and we have no control over the way it affects our bodies.   20% of people living with epilepsy are not able to manage their ailment because medication does not assist them with the prevention of seizure activity.  I want people to know not to look at us in a strange way, we are human too!  Love one another as you love yourself.  Also, take in mind, there are many celebrities and famous people who live with this medical condition.

 

Shay: Tell us about the event that you have planned for July 12th: 

Natalie:  The board president of my foundation, Shatima Tankson, has planned an event for entrepreneurs.  The Brothpreneur & Sistapreneur groups are a circle of support for those who dare to be an entrepreneurship. So far, they have about 300 + members and growing daily.  They share encouragement, resources, and support all in an effort to strengthen the world of entrepreneurs.  They are meeting to sponsor and support Angels Of Epilepsy Foundation at this event which will be held on July 12th from 5-9pm at Bar One Atlanta  687 Memorial Drive SE Atlanta, GA 30316.  Those out there who are entrepreneurs, we want them to come out, mingle and let others know about their business.  All donations & proceeds are for the special gift baskets and bags we give to Epilepsy patients during their stays at local hospitals.

 

Shay:  How can we help support your efforts?

Natalie:  I would like for others to help myself and my foundation spread the awareness for the millions living with Epilepsy.  They can post Angels Of Epilepsy info to their website, newsletters, etc. just to let others know what we’re about and how we are helping so many around the world.   Please visit us at www.aoepilepsy.org, follow us on twitter @AOEpilepsy, and join our page on FaceBook at “Angels Of Epilepsy Foundation”.

 

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